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It’s not spelled wrong.  It’s that time of year again for the Kammy’s Kause trip.  This is the largest fundraising event for Anna’s support group, Wolf-Hirschhorn Syndrome, or 4p- (Four P minus).  For those of you who don’t know it’s the fourth chromosome that is affected.  The star of the show, or one of them, […]

I didn’t think about it too much, although it did cross my mind.  I’m a granny with a special needs daughter.  I have always done everything with Anna so why would this be any different?  Well, it is.  But different is not bad, it’s actually tricky. Whenever and wherever Paul and I go, there is

Yes, I’m a Warrior.  Sometimes I don’t want to be.  Sometimes I just let things go because they are too much.  In my 23 years of caring for Anna, there are agencies I cannot stand.  I mean, I loathe them.  Two of these are the DHS (which I’ve renamed the Department of Human Stress) and,

We recently went to the mall with Anna for Elsie Jane’s first birthday, Aunt Anna.  The idea was to get her a Build a Bear at the store in Somerset Mall.  There are only a few malls that offer this store so we met the family there for the event.  Parking in this mall can

Journaling has been a “saving grace” to me all of my life.  While I disliked being forced to do this in literature in high school now I use it for self care.  I began journaling when Anna was born.  As you know I still have those journals and sometimes I post a page or two

Dear Readers:       I have made this blog a great part of my life for the past two years.  I have never missed a week.  Maybe posted late, but never completely missed a week.  I do this for Anna,me and  for those who live this life, and for those who want to understand this life.  Or

We started celebrating Anna’s birthday today.  I had an awesome compliment from my co-worker who said, “She’s a miracle.”  I thought inside my head, “Yes she sure is.”  I’ve prayed for her many times between the birth, the words I’ve said were told to me “Take her home and do the best you can.”  I’ve

As you faithful readers know the bus has given me a good deal of heartache.  I live in a town where the school district is just terrible.  I can compare this to the surrounding districts and other schools on the east side my children attended.  It would probably benefit most of my city if they

The life we live as Warriors is like a maze.  This is especially true when you are trying to find a reason for a behavior.  A piece of equipment that works, an insurance company that will work with you, a pharmacy, a caretaker, the list goes on.  As you wonderful readers know, we have been

I don’t know about you Warrior mom’s but summer is anything but lazy for me.  I have so much to do and I love this season.  Unlike the other seasons it involves an indoor and outdoor routine for me.  And for Anna, like what day is it anyway? It can be challenging because I have