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It’s not what you think. In fact, we Warriors have to think about it very carefully.  At times plan every move.  It’s not as easy as you would think to use the bathroom with your child.  Of course, I’m not talking about at home, I’m talking about out in the world.   There are many scenarios […]

What does self care or the term I used above “Individual love” mean to you?  Is it happening in your life?  Do you have a trip planned?  Do you get away from the stress of caring for your special needs family member often enough?  What is often?  I hope you are taking the needed breaks

The joys and sorrows that come with special needs parenting ebb and flow to other things in our lives.  Take for example, cars.  Now consider a  wheelchair van.  I have had four wheelchair vans since Anna was 9 years old.  That is four vans in 13 years.  This is not so good.  We never buy

And it’s a go, a go go go!  We went as planned and took Anna back to the roller skating rink.  It was so fulfilling for all of us.  We went to Riverside Arena in Plymouth, Michigan.   It’s fun to step back in time for me.   I skated as a kid a lot.  Like

Anna and I are scheduled to run a 5K this Saturday outdoors at a metro park. I’ve been pretty excited about this. It’s actually the virtual one that I posted the link for anyone interested. As it gets closer, some thoughts cloud my mind and take me back to the fact that Anna is not

2025 I’m blogging with my girl as we sit on our couch together.  She’s playing with her rattle and I’m reflecting on the new year ahead; and the beautiful year behind us.  I’m cooking a quiche with homemade fried potatoes that I made this morning and ham leftover from Christmas. This sounds mouthwatering after my

I’ve taken this from the popular song, by Band-Aid.  The famous lyrics, the best fundraising.  It takes me back to being a young girl and hoping to help those less fortunate.  I give the utmost credit to those who are inspiring, changing and bettering our world.  The hit song still resonates with me.  Thank you

  This week’s blog involves two hilarious true stories. I get a text from CVS saying Anna has scripts ready. I’m really not sure which ones because Paul usually tells me if we need something. I work close to CVS, so I’m usually the retriever. The texts started Friday, so Monday night, I ran up

Everyone needs a bucket list.  I made one for me and one for me and Anna in the spring and I thought it would be fun to check into it and see where we are at.   Just like many things I do as Warrior mom I  have many things that go undone.  I have countless

So this week started out with a text from Anna’s one-on-one nurse, Rebecca.  She let me know they had a “Soft lockdown.”  I responded with what does that mean?  I know what a lockdown means, but there are levels now?  What soft, medium and hard?  New terms, new concerns.  She responded that they have to