Count on Your Faith to Push You . .
Welcome
Frequently Asked Questions
What is Wolf-Hirschhorn Syndrome? This is a deletion of a part of the 4th chromosome on the “p” arm. The size of the deletion will effect the person. Anna has a good portion missing.
How is it diagnosed?
Many of the families are told before birth. It can be a grim diagnosis. All our stories are different but they all bring us together. Drs. Wolf and Hirschhorn discovered this syndrome.
Mission of my Blog
I want to be a source for truth and inspiration, but mostly truth. This life is tough and unexplainable to many. Live it and love it. You must find your strength to handle it. We call this the Warrior Mom.
No Excuses
You can have bad days, and you can crawl in bed or hide in the bathroom. That’s okay, but get back up and go out into the world and start again, that’s the Warrior Way.
The Humor
Anna has made me find the humor. No, it didn’t come in year one. Now I can laugh and delight in the heartaches and the sleepless nights. I share fun times and tough times. This is life for us, for me and for anyone caring for a special child, or care taking in general. It is quite a ride. You will need your safety belt and a very good emergency brake!
Recent Blog Post
Mom’s Night Inn 2024 (a tiny piece of heaven)
I look forward to it all year. The drive, the alone time, the moms, the…
Speak Up
As you know I’ve learned to taper my speech to become patient and think things…
I’m Glad I’m Not Her
I see this thought in people’s faces. I think the expression comes before some people…
Warriors Mom’s Thoughts
Stay strong in the hard times. Cry whenever you need to. Never Give Up.