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It’s been so upside down, but I’m still holding the family above water.  I realize how much care Anna really is as I watch it happen from the couch.  I find positives in everything.  I’m grateful she is in school.  I’m grateful that I can stop managing Paul and let him do his chores and […]

It’s not what you think.  It’s not benefits for Anna.  I try to make this blog mostly Anna focused.  But then who is Anna with her Warrior?  The children or adult we care for are dependent on us. But I will be experiencing short term disability in a sense.  I will be dependent on Paul

I’ve had a realization this week for Spring Break Time.  Anna sucks up my morning. And we know that ALL KIDS do that.   I let her suck it up, but boy do I like this Spring Break Time.  I’m out running way earlier, I get to read, do laundry, clean up the house, run,

I’ve been changing diapers for 22 years I understand the precious feeling of having time by myself before the caretaking begins AGAIN I can pull a grocery cart and steer a wheelchair so well that it should be an Olympic sport I appreciate the fragility of human life having almost lost Anna more than once

I dreaded the talk of guardianship when Anna was turning 18.  It wasn’t because I was confused, it was another thing that we need to do as special needs mothers, the Warrior role.  It was talked about almost incessantly at every IEP.  Then again at other meetings with Anna’s social worker.  Since Anna has a

I am finishing a book by another Warrior mom, Kate Swenson.  It is called “Forever Boy.”  It was given to me by my Aunt.  My aunt is a lovely person whom I have had the chance in recent years to get closer to and visit more.  It has been a joy to read this book

I’ve had many people over the years remark to me about what a “Strong, resilient, powerful, super energized, wondrous person” I am for having the stamina and love to give to Anna.  I feel great when I hear these words for sure.  I always feel that if they could just come inside me and feel

It’s that time of year again.  Winter Break.  We like it somewhat with our typical kids but with our special kids it’s all hands on.  This break always falls during Paul’s Birthday.  He is going to be the big “60.”  This week Anna is off and Paul always has to have his birthday with Anna

What a week.  What happens when the Warrior goes down?  It’s more than what you can imagine.  In our case, if the Warrior is down the whole house is changed.  Moms run the roost.  At least this is my scenario.  We keep things going, organized, stocked, filed, cleaned, updated, filled, piled, cooked, ready, uploaded, decorated,

It’s not what you think. In fact, we Warriors have to think about it very carefully.  At times plan every move.  It’s not as easy as you would think to use the bathroom with your child.  Of course, I’m not talking about at home, I’m talking about out in the world.   There are many scenarios