Doctor’s Cell Phone Numbers

We recently saw one of our very best special needs doctors.  She has known Anna since she was 6 years old.  She specializes in children and adults with special needs.  Her whole office and drive comes from helping this population.  We have been lucky to have met her and have her on our team.

It is always sentimental to go to her office.  I remember days when I rushed there to get Anna her PT or OT, or some type of evaluation.  Maybe devices for her legs, shoe inserts, or even wheelchairs and standers.  It was not always easy walking through those doors.  You never really fully get the capacity of what you are dealing with in the Warrior Mom life.  Don’t get me wrong, I’ve fully accepted all that has been and is Anna.  With this said, it’s a cycle.  Sometimes you’re in the struggle, sometimes  you are in motion, and sometimes you are in full victory.  The whole concept of what we do never really disappears, how could it? Life (ours) isn’t this way.  

I’m glad I’m good with letting things go with Anna.  It’s my choice to see how long I’m going to struggle with issues.  She no longer needs to be arm’s length from us.  Sometimes she’s in the other room while we eat, sometimes inside when we are outside. She is safe and content and that’s my goal. 

However, her mood swings and her irritability has reared its ugly head again.  Thank you Zoloft, we still need you.  But we have again been counting on her marijuana to control her Jeckyl and Hyde days.  So we went to see this amazing doctor.  I really was thankful her visit lined up with this issue with her mood again.  

I was honest and open in talking about the marijuana as usual.  She mentioned that the dose she is receiving is large.  I told her how she can’t be calm without it and this is what I came to her with today.  She mentioned the idea of what marijuana does in a developing body and adolescent.  Then she said, “We are not talking about an adolescent here, and we are talking about quality of life.”  I was relieved she got it.  Then the magic words, “There are lots of other medications we can try.”  My heart skipped a beat.  We conversed and decided to start with  Gabapentin.  

Then she said, “You have my cell phone number in case you need to text before our next visit?”  No I said.  The sweet doctor said, “How can I have been her doctor for all these years and you don’t have my cell phone number?”  I said, “I guess we weren’t in that category of needing you at our fingertips until now, that was a good thing.  But, I’m happy to take it now.” I pulled out my cell and added her number.  I’m in full victory right now.

We left, I ingested the great visit, the seriousness of it all and then I took Anna to school to finish her day.  This is a new cycle we are in.  We will endure and we will seek out all the answers possible.  My friends, if you are struggling talk to all your doctors.  Give yourself the grace you need when your caretaking is getting tough.  We do more than typical mothers, and any type of mothering is very hard work, and lifelong.  Hang in there Warriors.  

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